EBAers is a group of individuals who are affected by Epidermolysis Bullosa Acquisita either due to having the condition themselves or due to caring for close relatives that do and who have come together to support, guide and encourage each other through the management of the disease.

The EBAers group, an acronym for Epidermolysis Bullosa Acquisita - encouragement, resources, support, was originally constituted by George-Anna Lovett and due to the rare nature of the disease the group still remains relatively small in size.

The aims of the group are to raise awareness of and interest in EBA for the benefit of those with the condition, their families and the medical community. The members of the group are spread around various countries and as such we are a completely de-centralised group.

As far as the group's members are aware, EBAers is the only group that brings together individuals who are in some way affected by EBA in order to provide support and guidance through the difficulties of the disease.

Once past the initial shock of finding out that you have a particular condition, for most people, the next natural thing to do is try and find out more about whatever the condition happens to be and seek out some form of support. Due to the rarity of EBA, information is sparse and clear channels of support are hard to find. All members of the group have experienced and been frustrated by this when first diagnosed but we have, through various channels managed to get in touch with each other. We therefore hope that through this website we can elevate the exposure of EBA and in the process make it easier for anyone looking for information or support to find us.